Slow connections, limited bandwidth, intermittent power and the occasional monsoon are just a few of the obstacles to overcome while you’re trying to build a digital health information repository for clinics in rural Uganda.
Right now, health data in Kampala, the nation’s capital and largest city, is kept in massive, 11-by-17-inch books at rural clinics and periodically transmitted to the Ministry of Health. It’s a system not all that different from many doctor’s offices in the U.S. that haven’t made the digital migration yet. The difference is, health data in Uganda is a one-way street.
The Ministry of Health keeps a record, but they don’t use it as a distributive system—only for data gathering, according to Michelle Rogers, PhD, a health informatics expert and one of eight Drexel University faculty members who visited Kampala for a few weeks in February.
The trip was part of Rotary International’s Maternal and Child Healthcare Vocational Training Team (VTT) Project, a partnership with Uganda’s Makerere University College of Health Sciences that began in 2014 in hopes of providing better information and training to healthcare providers in a country where 16 mothers die during childbirth every day.
The Drexel team included Rogers’s peers from the College of Computing & Informatics, Deborah Turner, PhD and Christopher Yang, PhD; Owen Montgomery, MD, Gregg Alleyne, MD, Yanick Vibert, DO, Laniece Coleman, DrNP, CNM, and Margaret McMahon, CNM, from Drexel’s College of Medicine and Shannon Marquez, PhD, from Drexel’s Office of International Programs and School of Public Health. With Rotary International, they initially intended to pass along some obstetrics and gynecology information in the form a few hard drives and some reference materials. But the team quickly realized that three weeks and some hardware wasn’t going to be as helpful as they’d hoped.
“We’re looking at an area where there are many private healthcare facilities supported by non-government organizations that are well-funded, quality facilities; but the public hospitals and clinics, that serve many of the people, are not as well supported and face challenges that our healthcare providers in the U.S. haven’t had to deal with in many years,” Rogers said.
So instead of just installing hard drives and holding a few lectures and training sessions to distribute the reference materials, the group started plotting a more sustainable solution. Their plans involved pulling open-access reference material into a central database, training librarians and technicians on how to manage and update it, and building a dependable system distance learning system for physicians, midwives and other clinicians.
“Three of our biggest goals were to find out what reference resources the librarians needed, figure out how to load them into a database and then come up with a way for doctors and med students at rural clinics to access them.”
Working with doctors, nurses, clinicians, librarians and representatives from the Ministry of Health and local Rotary clubs, the team identified the most pressing health information needs and the technology required to deliver and maintain an archive of it.
“The issue wasn’t just a lack of a dependable power source, but also functioning essentially on a dial-up connection,” Rogers said. “If you can recall how long it took to download from the web on a dial-up connection—that’s what we were dealing with. So just like back in the dial-up days, we are setting up downloads overnight and trying to keep the file sizes to a minimum.”
And then came the challenge of making sure that residents stationed at clinics in isolated areas tens of miles away from the hospital, and often without a dependable phone or internet connection, could still access necessary medical reference resources even when they were completely cut-off from the hospital.
To deal with this issue, the group provided clinics with laptops pre-loaded with locally saved reference materials and the Global Library of Women’s Medicine. The idea is that eventually they can be brought back to the nearest hospital or medical library for periodic updating.
In addition to the laptops, small, rugged portable hotspots, called BRCKs, will be installed to set up an intranet within each of the clinics. The hotspots are designed by a company in Kenya for just such a use—they can serve as a hub for local devices and have enough backup power to survive a blackout.
“We realize that much of these things are not a permanent fix,” Rogers said. “But they’ll give clinicians a better option when they’re facing emergency situations without a communication link to the central hospital.”
In similar fashion, a group of Ugandan doctors, nurses, midwives and a technician from Makarere University will make annual visits to Drexel for training on database and video conferencing software. They will also meet with doctors and students at the College of Medicine.
“The people involved are really the key to making this partnership successful and achieving our goals,” Rogers said. “There are a lot of factors that we can’t control—like the weather and the wireless—but our partners in Uganda, the midwives, local community workers, doctors, nurses and technology professionals are as committed as we are to making this work. And that’s why I believe this will be a fruitful partnership for everyone involved.”
The team is slated to return to Kampala in 2016 for the final year of the Rotary VTT program, but hopes to continue the program with additional funding.